From aspirational standards to practical assessment: Introducing the transplant registry maturity model
Yee Lu (US)
Clinical Assistant Professor of Internal Medicine · Internal Medicine - Nephrology · University of Michigan, Ann Arbor · Ann Arbor
I believe that we are on the precipice of having the technical resources, mathematical model, and computational power to leverage the wealth of patient level data to advance medical practices. The digitization of healthcare via electronic health records (EHR) can be used to improve multiple domains, including patient care and outcome, regulatory and compliance, research, and resource utilization. However, the data structure, in terms of format, quality, timing, in EMR is capture and document patient care. As the associate chief of medical informatics, my priorities are to standardize documentation of discrete variables, improve mechanisms of identifying cohorts, and build user friendly access to data. As the Data Director for the Transplant Center Research Repository, I developed a curated EMR based data repository of all solid organ transplant recipients at University of Michigan that has been utilized multiple publications and NIH funded projects. As a transplant nephrologist trained in research design and embedded in data architecture for the transplant center, I am uniquely positioned to generate the appropriate clinical patient data repository required for this research proposal.